The following is the second article in a 3-part series about the transformation that has taken place for the bleeding disorders community in Nigeria, thanks to the WFH and our supporters.
One morning at 2 a.m., Megan Adediran, Founder and Executive Director of the Hemophilia Foundation of Nigeria (HFN), received a call from a mother asking for help: her son had fallen and would not stop bleeding. By 6 a.m. when Adediran called back to check-in, the young man had passed away.
These stories used to be far too common in Nigeria. Fortunately, the tide is turning, in large part because of the training and support that healthcare providers and patient advocates across the country have received from the World Federation of Hemophilia (WFH). In fact, ensuring that they are equipped and working together effectively to support people living with bleeding disorders is a pillar of the WFH’s healthcare development work. “We all know our strengths and weaknesses, and we know that we are here to complement one another for the good of patients,” explained Adediran.
Partnerships established through the WFH Twinning Program have also had a significant impact in Nigeria. Hemophilia treatment centre (HTC) pairings have been instrumental to establishing multidisciplinary care teams across the country. The partnership between the Abuja National Hospital and the RUSH HTC in Chicago, U.S.A, helped raise awareness of bleeding disorders among healthcare professionals and provided training opportunities for laboratory technicians, nurses, and physicians. A second pairing, between the University of Nigeria Teaching Hospital (UNTH) in Enugu and the Children’s Hospital of Philadelphia (CHOP) HTC in Philadelphia, U.S.A, a few years later led to the identification of 30 people with bleeding disorders, the creation of educational resources for nurses, and the training of more than 25 healthcare workers.