Research has shown that prophylaxis can have a major impact on the quality of life of people with a bleeding disorder and a very encouraging example of this can be found in El Salvador. In the country’s capital of San Salvador, the Benjamin Bloom National Children’s hospital has seen first-hand how donated factor provided for prophylaxis by the World Federation of Hemophilia’s (WFH) Humanitarian Aid Program can help children go from missing school and feeling secluded from their peers to living a normal childhood.
“We are seeing a new generation of patients with hemophilia,” said Armando Estrada, MD, referring to prophylaxis versus the past practice of using cryoprecipitate and plasma to treat acute bleeds. Today, he said, “If you put [a person with hemophilia] next to any other person, you wouldn’t notice that they have hemophilia.”
Being able to offer factor for prophylaxis instead of just for acute bleeds was made possible by the close relationship between the Benjamin Bloom National Children’s hospital and the WFH. Without regular donated factor provided by the WFH, prophylaxis simply wouldn’t be possible.