The World Federation of Hemophilia (WFH) organized a regional workshop on outreach and data collection for South Asia and East Asia Countries in Colombo, Sri Lanka from April 6 to 8, 2018. A total of 19 national member organization (NMO) leaders, government and hemophilia treatment centre (HTC) representatives participated in the workshop from six countries: India, Bangladesh, Nepal, Sri Lanka, Maldives, and Mongolia.
The data collection part of the workshop focused on how to effectively identify, collect, analyze, and present relevant data to support the case for care. The objective was to highlight the value and importance of data collection; enhance research and analysis for the purpose of improving treatment and supporting health planning; provide practical guidance on how to collect data and how to use data for advocacy; and empower countries to better advocate and support people with bleeding disorders.