WFH NETWORK

A rich program awaits attendees of the WFH 2018 World Congress

The WFH 2018 World Congress is a unique opportunity for the bleeding disorder community to gain further knowledge and insight into improvements to care and treatment. Everyone from patients and families, WFH national member organizations, physicians, other healthcare providers, and regulators will have the chance to learn first-hand about the research that is changing our community today. Throughout the four days of the Congress, the world’s leading experts will share their research with fellow participants.

The program will cover a range of event types, including: general plenaries, medical plenaries, multidisciplinary plenaries, medical sessions, multidisciplinary topics, and professional development sessions. The Congress program will also feature a number of professional tracks in the areas of dental, nursing, psychosocial, musculoskeletal, and laboratory science.

Although the WFH team is hard at work finalizing the program, here’s a preview of what you can expect to see the Congress in Glasgow, Scotland.

General plenaries

  • Gene therapy: Ready for prime time? – Thierry van den Driessche
  • Shifting paradigms in the management of bleeding disorders: The promise of bioengineered molecules – Steven Pipe

Medical plenaries

  • How to measure outcome in hemophilia: Perspectives from patient, physician and payer – Kathelijn Fischer
  • Considerations when switching patients from established standard replacement therapy to extended half-life or emerging treatments – John Pasi
  • What can we learn from gene therapy for other inherited disorders? – Marina Cavazzana
  • Optimizing bleed prevention: Womb to tomb – Amy Shapiro

Multidisciplinary plenaries

  • Patients informing policy decisions – Karen Facey
  • Women and bleeding disorders – Claire McClintock
  • Your brain, your pain – how, why and where? – Mick Thacker

Medical sessions

  • Gene therapy – issues and prospects
  • Gene therapy – measuring benefit and defining risk
  • Rare bleeding disorders
  • Women with bleeding disorders
  • Bleeding disorders in the genomic era
  • Inhibitors: Clinical discussion
  • von Willebrand disease: Clinical conundrums
  • Emerging therapies: Global perspectives
  • Joint disease
  • Prophylaxis: global models of low dose prophylaxis

Multidisciplinary topics

  • Child to teen, what does it mean
  • A Bleed or not a bleed…that is the question
  • When will technology revolutionize care?
  • Practical approaches of genetic and genomic testing
  • Caring for carers
  • Nurse and physio-led clinics: Is it the future?
  • Intimacy and self-esteem
  • Whose hemophilia is it? – Guiding children and teens with hemophilia
  • Can’t or won’t pay: Health economics and bleeding disorders
  • Voices of women: New challenges, different visions
  • Together we can do more: Sticking to the program
  • Forward thinking patient organizations
  • Continuity in quality of life
  • What is your Everest? – Encountering barriers but seeing opportunities
  • Treating and bleeding: Healthcare professionals living with a bleeding disorder

Professional development sessions

  • New developments and key concepts in coagulation therapies, safety, supply and access
  • Musculoskeletal professional development session
  • Gene therapy: Back to basics
  • Nurses’ professional development workshop
  • Psychosocial professional development workshop
  • Dental professional development workshop
  • Advocating for better outcomes: Using data to build the evidence base
  • Publishing workshop
  • Youth workshop
  • Quality in the coagulation laboratory

To find out more about the WFH 2018 World Congress program, please visit the program page.