Memorial art—which is used to honour and remember people lost due to a tragedy—has many forms. Well known examples are the NAMES Project AIDS Memorial Quilt, and the Vietnam Veterans Memorial. Many family members and friends of the bleeding disorders community have experienced the loss of loved ones due to inherited bleeding disorders and their related complications. To honour those individuals, the WFH Multidisciplinary Program Committee invites you to create your own memorial art for our community and share it with the world at the WFH 2022 World Congress in Montreal, this year.
It’s important to share the stories of those who are not with us anymore, and share the experiences of the people who were close to them. Statistics are easy to dismiss—names, faces, stories are not. By contributing to this project, you will not only shine a new light on the members of our community who have passed, but you will also help the next generation better understand its history, which can help them manage their own challenges living with a bleeding disorder.
Anyone can participate in this project! The videos can be from people with inherited bleeding disorders who have experienced the loss of community members, or caregivers, friends and family members of a person who has passed. Share your story of a person who has passed as a direct result of their inherited bleeding disorder. Or, if you have a bleeding disorder yourself, share your story living with a bleeding disorder and managing your condition.
To find out more about how you can participate, please click here.
The WFH thanks Rick Waines and Robert Cooper for initiating this important endeavour.