Established in 2007 by WFH USA, the Susan Skinner Memorial Fund supports the training, education, and leadership development of young women with bleeding disorders. Scholarship recipients must demonstrate a capacity to improve the care of women with bleeding disorders in their country and the potential to become future leaders in the bleeding disorder community.
The fund commemorates the late Susan Skinner, an American woman with unwavering determination to ensure the availability of safe and effective treatment for her two sons. WFH USA is deeply grateful to Thomas Skinner, who created the fund, and the people and organizations in the bleeding disorder community who continue to support the fund. Please join us in congratulating the 2017–2018 Susan Skinner Memorial Fund scholarship recipients.
Najiba Chayah (Moknine, Tunisia)
Najiba lives with von Willebrand disease and is vice-president of l’Association tunisienne des hémophiles, the WFH national member organization in Tunisia. Her primary focus is on developing relationships with people with bleeding disorders in rural areas. Her energy and enthusiasm make her an ideal ambassador for the organization.
Amanda Brito del Pino (Montevideo, Uruguay)
Amanda is a carrier. Doctors diagnosed her son Justin with severe hemophilia A at eight months of age. From the very beginning, Amanda has been an active presence in her national patient organization, the Asociación de Hemofílicos del Uruguay. Her degree in social communications is a tremendous asset to the organization and she is now responsible for most of their organizational communications.
Rana Mahmoud (Beirut, Lebanon)
Rana is a registered nurse with severe factor VII deficiency, a condition that also affects her sister. Rana works to advance the cause of women living with bleeding disorders and has been an invaluable resource in the Association Libanaise de l’Hémophilie, providing guidance and advice to new and existing members.
Nikole Scappe (Corapolis, Pennsylvania)
Nikole has volunteered in her community over the past 12 years, including as head counsellor at Camp Hot-to-Clot. Her engagement with her local National Hemophilia Foundation (NHF) chapter has grown over the years and she is now a trusted advocate for women living with bleeding disorders, as well as the community at large, in Western Pennsylvania.
Marlee Whetten (New York, New York, U.S.A.)
Marlee works with the NHF (U.S.A), and her appointment comes after a very impressive tenure with the NHF National Youth Leadership Institute. Marlee’s passion lies in developing the next generation of leaders and she hopes to take her skills and energy into the international arena in the coming years.
Shantelle Winslow (Tuscon, Arizona, U.S.A.)
Shantelle is a long-time volunteer with Camp Valor, a summer camp run by the Utah Hemophilia Foundation, an NHF chapter. Through outstanding achievements, Shantelle has demonstrated her potential to be a long-term leader within the community. Children and young adults in her community have grown more confident knowing that Shantelle will support them at every step.