Education
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State-of-the-art medical educational webinar series launching in April
On Thursday, April 22, 2021, from 8 a.m. to 10 a.m. Eastern Standard Time (EST), join us for a state-of-the-art medical educational webinar series on...
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WBDR improves data collection Senegal
Data collection is essential to improve the knowledge and management of hemophilia so that physicians can provide better care—and patients can enjoy a better quality...
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Best practices for COVID-19 vaccination explained Haemophilia article
The COVID-19 pandemic has had a huge impact around the world, and people everywhere has been affected by the virus either directly or indirectly—including people...
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Update on Ferring recall of desmopressin nasal sprays
Ferring Pharmaceuticals has issued an update on the global recall in July and August 2020 of its desmopressin nasal sprays, including the 1.5 mg/ml desmopressin...
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ASH ISTH NHF WFH VWD Guidelines Published
On January 7, 2021, the culmination of a multiyear international collaboration was published in Blood Advances: ASH ISTH NHF WFH Guidelines on the Diagnosis of...
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Centers for Disease Control Public health webinar series on blood disorders
Featuring: overview of WFH Treatment Guidelines, 3rd Edition Date, time: December 10, 2020, at 2 p.m. EST Zoom link: TBD On December 10, 2020, at...
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Gene therapy: Is robust scientific inquiry the missing factor?
Date, time: Friday, December 11 at 10:00 a.m. EST (15:00 UTC/GMT) Zoom link: https://us02web.zoom.us/webinar/register/WN_B-1KYKY1QAqjYYUN1mwP2A On Friday, December 11 at 10:00 a.m. EST (15:00 UTC/GMT), the...
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Article on the WFH Gene Therapy Registry published
The WFH Gene Therapy Registry (GTR) is a global effort to ensure that safety and efficacy outcomes, as well as patient-important outcomes, are collected over...
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2020 Virtual WFH Gene Therapy Round Table covers new developments
The 2020 WFH Gene Therapy Round Table (GTRT) was held virtually this October, and provided participants with an update on research related to the development...
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Report on the Annual Global Survey 2019 now available
The Report on the World Federation of Hemophilia (WFH) Annual Global Survey (AGS) 2019 is now available online. The report includes global demographic and treatment-related...
