Featured
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WBDR experience: Titilope A. Adeyemo at the Lagos University Teaching Hospital
The WFH World Bleeding Disorders Registry (WBDR) is a web-based data entry system that provides a platform for a network of hemophilia treatment centres (HTCs)...
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WFH organizes laboratory coagulation training workshop in Palestine
This past June, the WFH—in cooperation with the Palestinian Ministry of Health and the Palestine Avenir Hemophilia Committee—organized a Laboratory Coagulation Training Workshop in Ramallah,...
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A family affair: meet community leader Madonna McGuire Smith
Madonna McGuire Smith, Executive Director of the Hemophilia Foundation of Oregon (HFO), has been working with the bleeding disorder community for eleven years. She always...
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2018 Twins of the year announced
The World Federation of Hemophilia (WFH) Twinning Program was developed to improve hemophilia care in emerging countries through a formal, two-way partnership between two hemophilia...
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Chew “Kim” Yin: mother, VWD patient and carrier finds balance
Chew “Kim” Yin understands balance and how difficult it can be to maintain in life if you do not have family and a community there...
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Ahereza Anthony thanks WFH Humanitarian Aid Program
Ahereza Anthony is a young boy from Uganda with a bleeding disorder. He lives in a small village where access to factor is difficult—a challenge...
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Meet Global Community Membership Program member Veena Selvaratnam
Veena Selvaratnam, MD, an Adult Hematologist at the Ampang Hospital in Malaysia, believes in the power of community. It is one of the reasons she...
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WFH WBDR 2018 Data Report now published
The WFH World Bleeding Disorders Registry (WBDR) 2018 Data Report now available! This report is based on 1,181 patients who were enrolled between January and December 2018. As of...
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WFH welcomes Bayer to Humanitarian Aid Program
The WFH Humanitarian Aid Program aims to improve the lack of access to care and treatment for people with inherited bleeding disorders in developing countries,...
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GAP helps improve care in Honduras
In 2014, Honduras’ national member association (NMO), the Sociedad Hondureña de Hemofilia, and the World Federation of Hemophilia (WFH) started a joint effort to improve...
