Philanthropy
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Autonomy in Malawi: meet Comfort
Comfort Chiarambo and his mother, Eneless Faith Piass, live in Namitete, Malawi in East Africa. Eneless suspected that her son had hemophilia at four months...
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A global experience: meet Chris Guelcher
Hemophilia Alliance Travel Grant recipient Chris Guelcher has been serving the global bleeding disorders community for over twenty-five years as a hematology nurse, administrator, researcher...
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Sharing in Nepal: meet Susan Cutter
At first hesitantly—but then, more confidently, as trust was built—patients attending a recent WFH Nurses Training workshop in Nepal began to share their personal experiences...
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Resilient Patients Do Play: Ask Frederica Cassis
Psychosocial Committee Secretary and World Federation of Hemophilia (WFH) Professional Member Frederica Cassis believes that comprehensive education—and a comprehensive healthcare team—are the foundation of the...
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In their own words: WFH eLearning helps immigrant patient
Paula James, MD, Megan Chaigneau, RN and Lisa Thibeault, RN, are healthcare professionals serving the Canadian bleeding disorders community. Many patients come through the doors...
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WFH Africa Summit a life-changing experience for Hemophilia Alliance Travel Grant Recipients
Hemophilia Alliance Travel Grant recipients Dong Chen and Rebecca Schaffer could only express gratitude and a deep resolve to continue working with the bleeding disorders...
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Ed Kuebler: 2019 Hemophilia Alliance Travel Grant recipient
With twenty-seven years of experience working with the bleeding disorder community, World Federation of Hemophilia (WFH) Psychosocial Committee Chair and 2019 Hemophilia Alliance Travel Grant...
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Overcoming obstacles to build a bright future: Kyelle and Mervyn Virgil
Kyelle Virgil, who lives with severe hemophilia A and inhibitors in Trinidad and Tobago, remains undaunted in the face of the obstacles he has confronted...
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A family affair: meet community leader Madonna McGuire Smith
Madonna McGuire Smith, Executive Director of the Hemophilia Foundation of Oregon (HFO), has been working with the bleeding disorder community for eleven years. She always...
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Chew “Kim” Yin: mother, VWD patient and carrier finds balance
Chew “Kim” Yin understands balance and how difficult it can be to maintain in life if you do not have family and a community there...
