Philanthropy
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Ed Kuebler: 2019 Hemophilia Alliance Travel Grant recipient
With twenty-seven years of experience working with the bleeding disorder community, World Federation of Hemophilia (WFH) Psychosocial Committee Chair and 2019 Hemophilia Alliance Travel Grant...
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Overcoming obstacles to build a bright future: Kyelle and Mervyn Virgil
Kyelle Virgil, who lives with severe hemophilia A and inhibitors in Trinidad and Tobago, remains undaunted in the face of the obstacles he has confronted...
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A family affair: meet community leader Madonna McGuire Smith
Madonna McGuire Smith, Executive Director of the Hemophilia Foundation of Oregon (HFO), has been working with the bleeding disorder community for eleven years. She always...
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Chew “Kim” Yin: mother, VWD patient and carrier finds balance
Chew “Kim” Yin understands balance and how difficult it can be to maintain in life if you do not have family and a community there...
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Meet Global Community Membership Program member Veena Selvaratnam
Veena Selvaratnam, MD, an Adult Hematologist at the Ampang Hospital in Malaysia, believes in the power of community. It is one of the reasons she...
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From A to B: Mutala’s Journey
Less than 200 miles separates the capital cities of Dakar, Senegal and Banjul, The Gambia on Africa’s west coast. Traffic regularly flows between the two...
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Beyond the hospital and into the community with Jameela Sathar, MD
The WFH is proud to introduce the newest member of the GCMP Professional Community, Jameela Sathar, MD. Sathar typifies how the healthcare professionals in our...
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WBDR: a strong foundation for advocacy
Edwin Goh, Vice-President, Hemophilia Society of Malaysia, opened the, “Measuring and Improving Quality of Care for People with Bleeding Disorders” workshop held in Kuala Lumpur—the...
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Pedro Fraire: a youth leader who walks the walk
Pedro Fraire is a resident of Despeñaderos, a small town near Córdoba in central Argentina. He lives with severe hemophilia and will celebrate his 21st...
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Medical Student, sister, carrier—one youth leader’s story
Jo Kroll, a native of Tartu, Estonia, barely remembers a time in her life when bleeding disorders were not part of her day-to-day life. At...
