Research
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Head of Nepalese HTC discusses WBDR in video
Bishesh Sharma Poudyal, MD, talks with Donna Coffin, WFH Director, Research & Public Policy about the impact the WFH World Bleeding Disorders Registry (WBDR) is having on the Civil Service...
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WBDR hits 1,000 patient milestone
The World Federation of Hemophilia (WFH) is happy to announce that on November 28th, 2018 the World Bleeding Disorders Registry (WBDR) reached an important milestone:...
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Now available: report on the Annual Global Survey 2017
The Report on the World Federation of Hemophilia (WFH) Annual Global Survey (AGS) 2017 is now available in print and online at www.wfh.org/globalsurvey. The report includes...
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WBDR experience: Civil Service Hospital, Nepal
The WFH World Bleeding Disorders Registry (WBDR) is a web-based data entry system that provides a platform for a network of hemophilia treatment centres (HTCs)...
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WBDR reaches important milestones
The World Bleeding Disorders Registry (WBDR) provides a global platform for hemophilia treatment centres (HTCs) to collect standardized data on people with hemophilia. The WFH...
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New gene therapy CME activity: The Science of Gene Therapy for Hemophilia
The World Federation of Hemophilia (WFH) is proud to announce the launch of the next activity in Clinical Advances in Gene Therapy for Hemophilia, an...
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WFH WBDR Research Support Program announced
The World Federation of Hemophilia (WFH) is pleased to announce the launch of the WFH World Bleeding Disorders Registry (WBDR) Research Support Program. The WBDR...
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New gene therapy CME program launched
The World Federation of Hemophilia (WFH) is proud to announce the launch of Clinical Advances in Gene Therapy for Hemophilia, an online continuing medical education...
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WFH World Bleeding Disorders Registry kick-off webinar and live training opportunities
On December 12, 2017, the WFH hosted a webinar for people across the globe interested in learning more about participating in the WFH World Bleeding...
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WBDR to go live this January
The World Federation of Hemophilia (WFH) World Bleeding Disorders Registry (WBDR) will go live with the enrollment of the first patient into the patient registry on...
