Research
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Now available: The WFH Report on the Annual Global Survey 2018
The World Federation of Hemophilia (WFH) Report on the Annual Global Survey (AGS) 2018 is now available! This survey provides a global snapshot of the...
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WBDR experience: South East University of Nigeria Teaching Hospital
The WFH World Bleeding Disorders Registry (WBDR) is a web-based data entry system that provides a platform for a network of hemophilia treatment centres (HTCs)...
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2018 Annual Global Survey (AGS) to be released soon
Over the past 20 years, the Annual Global Survey (AGS) has provided an international snapshot of the progress in hemophilia patient identification and access to...
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WFH WBDR 2018 Data Report now published
The WFH World Bleeding Disorders Registry (WBDR) 2018 Data Report now available! This report is based on 1,181 patients who were enrolled between January and December 2018. As of...
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Collaboration announced between St. Jude Children’s Research Hospital and WFH
The WFH is proud to announce that we will be collaborating with St. Jude Children’s Research Hospital in order to establish a gene therapy clinical...
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1st WBDR Data Report to be released soon
The WFH is proud to announce that the 1st World Bleeding Disorders Registry (WBDR) Data Report will be published this summer. The WBDR Data Report...
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WBDR: a strong foundation for advocacy
Edwin Goh, Vice-President, Hemophilia Society of Malaysia, opened the, “Measuring and Improving Quality of Care for People with Bleeding Disorders” workshop held in Kuala Lumpur—the...
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New and Updated Inhibitor Primer: A comprehensive backgrounder
Inhibitors are a serious treatment complication that can occur when people with hemophilia are exposed to clotting factor concentrates. Some patients may have an immune...
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Head of Nepalese HTC discusses WBDR in video
Bishesh Sharma Poudyal, MD, talks with Donna Coffin, WFH Director, Research & Public Policy about the impact the WFH World Bleeding Disorders Registry (WBDR) is having on the Civil Service...
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WBDR hits 1,000 patient milestone
The World Federation of Hemophilia (WFH) is happy to announce that on November 28th, 2018 the World Bleeding Disorders Registry (WBDR) reached an important milestone:...
