Research
-
2020 Virtual WFH Gene Therapy Round Table covers new developments
The 2020 WFH Gene Therapy Round Table (GTRT) was held virtually this October, and provided participants with an update on research related to the development...
-
20-year progress and findings of WFH Annual Global Survey published in Haemophilia
The World Federation of Hemophilia (WFH) Annual Global Survey (AGS) was launched to standardize the collection of data on the global bleeding disorder population. The...
-
Now available: The WFH Report on the Annual Global Survey 2018
The World Federation of Hemophilia (WFH) Report on the Annual Global Survey (AGS) 2018 is now available! This survey provides a global snapshot of the...
-
WBDR experience: South East University of Nigeria Teaching Hospital
The WFH World Bleeding Disorders Registry (WBDR) is a web-based data entry system that provides a platform for a network of hemophilia treatment centres (HTCs)...
-
2018 Annual Global Survey (AGS) to be released soon
Over the past 20 years, the Annual Global Survey (AGS) has provided an international snapshot of the progress in hemophilia patient identification and access to...
-
WFH WBDR 2018 Data Report now published
The WFH World Bleeding Disorders Registry (WBDR) 2018 Data Report now available! This report is based on 1,181 patients who were enrolled between January and December 2018. As of...
-
Collaboration announced between St. Jude Children’s Research Hospital and WFH
The WFH is proud to announce that we will be collaborating with St. Jude Children’s Research Hospital in order to establish a gene therapy clinical...
-
1st WBDR Data Report to be released soon
The WFH is proud to announce that the 1st World Bleeding Disorders Registry (WBDR) Data Report will be published this summer. The WBDR Data Report...
-
WBDR: a strong foundation for advocacy
Edwin Goh, Vice-President, Hemophilia Society of Malaysia, opened the, “Measuring and Improving Quality of Care for People with Bleeding Disorders” workshop held in Kuala Lumpur—the...
-
New and Updated Inhibitor Primer: A comprehensive backgrounder
Inhibitors are a serious treatment complication that can occur when people with hemophilia are exposed to clotting factor concentrates. Some patients may have an immune...
