Over the last few decades, many of the World Federation of Hemophilia (WFH) national member organizations (NMOs) in Latin America have expanded their networks, become more consolidated, and have found creative methods to advocate for the improvement in bleeding disorders care in their countries.
Traditionally, the biggest challenge for people with a bleeding disorder has been to access treatment such as clotting factor concentrates (CFC). However, with increased availability of treatment in many of these countries, the newer obstacle that many face is getting access to sustained care.
All organizations go through similar stages of development – from the initial formation to a more organized patient community. As patients and families become more empowered, then communities increasingly advocate effectively for change and to work together to ensure that the necessary care and treatment becomes available for people with hemophilia and other related bleeding disorders within their country.