WFH NETWORK

The Foundation of Hemophilia Argentina celebrates 70 years

On October 26, 2014, the Foundation of Hemophilia in Argentina (FHA) celebrated 70 years of continued work improving the lives of people with a bleeding disorder.

The FHA was the first organization in the world to assist patients with hemophilia and other bleeding disorders. Before its creation, patients in Argentina were treated in the hematology departments of public hospitals and professionals were not specifically trained in hemophilia and other bleeding disorders. The Hemophilia Foundation of Argentina was created in Buenos Aires on October 26, 1944, by Dr. Alfredo Pavlovsky.

Since 1944, the FHA has helped people with bleedings disorders and their families, offering professional assistance in both medical and psychological care in all areas required for the specialized treatment of bleeding disorders.

“The growth and development of the organization has also covered the field of research. Argentina has been a pioneer in treatment availability and the first country in the region to introduce the concept of prophylaxis in replacement therapy. This has substantially improved the quality of life and life expectancy of those of us who suffer from the disease,” said Carlos Safadi Márquez, a lawyer, a patient with hemophilia and the President of the Administration Council of the Foundation of Hemophilia in Argentina.

As leading organization in the bleeding disorders community, the FHA has been an international training centre for health professionals since 1972 and has consistently helped to raise the standard of care within the country and around the world.

Dr. Miguel Tezanos Pinto, hematologist and member of the Medical Committee of the Foundation of Hemophilia stated, “Argentina is a reference country in the treatment and multi-disciplinary attention which is fundamental for the patient who knows he is attending a centre where he will find specialists in other fields of medicine who also happen to know about hemophilia.”

Celebrating 70 years of growth

The World Federation of Hemophilia (WFH) president Alain Weill and Vice President, Medical Marijke van den Berg attended a series of meetings and events and helped celebrate the milestone anniversary in Buenos Aires, in November 2014.

On November 18, the WFH delegation met with Daniel Yedlin, Vice Minister of Health in Buenos Aires, and participated in a press conference. Later that day, the hemophilia and bleeding disorder community got together to celebrate the anniversary at a dinner at the Intercontinental Hotel. During the dinner Weill presented a certificate to the FHA as recognition of its outstanding work after 70 years.

Weill thanked the Foundation for the invitation and congratulated them for all the hard work and commitment to the hemophilia and other bleeding disorder’s community not only in Argentina but around the world.