The World Federation of Hemophilia (WFH) is proud to announce that our U.K national member organization (NMO) and WFH 2018 World Congress host, The Haemophilia Society, is making a £45,000 gift over three years in support of the WFH Cornerstone Initiative. President Alain Weill expressed his gratitude, noting, “This substantial gift will enable the WFH to improve the life of our most vulnerable community members.”
Clive Smith, who is Chair of The Haemophilia Society Board of Trustees, notes that the dire situation patients face in the developing world came into focus for the U.K. community when Glasgow hosted the WFH 2018 World Congress. The board expressed their wish to support the global community in a meaningful way after the event and the Cornerstone Initiative allows them to do just that. Clive and the other board members were moved by the lack of access far too many of attendees face: “It is sobering that only 10% of the expected number of people with bleeding disorders in Africa have been identified and that 20% of the world’s population consume 70% of the world’s supply of factor VIII concentrate. We hope this gift goes some way towards addressing this inequality.”
The Cornerstone Initiative provides training and support to patients and healthcare professionals in developing countries so they can lay the foundation for an integrated and sustainable structure of patient support and care delivery. The program focuses on establishing diagnostic capacity, ensuring basic medical expertise, and building up the national patient organization. With this infrastructure in place, countries will be able to benefit from our full range of programs and activities—including the WFH Humanitarian Aid Program—and begin to see meaningful progress towards our shared vision of Treatment for All. The Cornerstone Initiative produces results: participating countries see significant increases in diagnosis, the establishment of new hemophilia treatment centres with trained healthcare providers, and more effective patient organizations.
WFH CEO Alain Baumann and the entire WFH Board of Directors thanks The Haemophilia Society for standing with the global community and sharing our belief that where you live should not determine your access to care. “Our twelve founding members came together to fund the Cornerstone Initiative in 2012, and that endeavour stands testament to the deep sense of solidarity within our community,” Baumann says. “Your contribution, along with contributions from NMOs in Canada, France and Switzerland, will leave a lasting legacy of hope for those currently living with little or no access to treatment.”
The WFH works to ensure every person—including those living with hemophilia and von Willebrand disease, those with rare factor deficiencies and women with bleeding disorders—are properly diagnosed, have access to safe and effective treatment, and receive the best possible care. Through our global network of NMOs, the WFH represents the interests of people with hemophilia and other inherited bleeding disorders in 140 countries.