WFH NETWORK

Treaters share learnings during WFH Humanitarian Aid webinar

On June 23, the WFH Humanitarian Aid Program held a webinar called “Virtual Case Conference and Bedside Rounds” to give participants the chance to share their diagnosis and management cases with their peers and acquire valuable field experience and expertise. The event was the second webinar in a new series of virtual scientific sessions developed by the WFH Humanitarian Aid Program to ensure that the World Federation of Hemophilia (WFH) continues to engage with treaters despite the challenges imposed by the COVID-19 pandemic. Because the event was held online, treaters all around the world had the chance to participate. Individuals from big cities and major hospitals and universities were part of the session—but treaters based in remote areas had an equal opportunity to participate.

The objective of the session was to give participants the chance to gather recommendations in order to improve the quality of care they are able to offer people with bleeding disorders. This exchange of information is important, because although diagnosis and treatment are similar around the world, the availability of resources—or lack of availability—have a significant impact on how treaters care for their patients. The format of the event was both a case conference—where panelists presented their cases—and a bedside rounds, where the doctors go from patient to patient, sharing their comments and gathering feedback. The approach is exactly like a resident giving a summary of a case at the bed of the patient, focusing on their current complaint, past history (family and medical), tests performed, clinical impression, current treatment and recommended treatment.

A large part of the information exchange during the session was related to the fact that many countries have similar challenges when it comes to resource availability. Having an event where different treaters from these countries can collaborate provides everyone with the chance to explore common solutions and treatment modalities that are realistic for their reality.

The panelists for the event were Len Valentino, MD, President and CEO of the NHF (U.S.A), and Amy Dunn, MD, WFH USA Board Member, Nationwide Children’s Hospital (U.S.A). Over 100 doctors from Cambodia, Indonesia, Myanmar, the Philippines, Thailand, and Vietnam took part in the webinar.

The feedback from attendees was overwhelmingly positive. Until travel restrictions are eased, the WFH will continue developing virtual scientific sessions in order to ensure that treaters continue to provide the best possible care for people with a bleeding disorder.

To watch sessions from the WFH Virtual Summit – Connecting the Global Bleeding Disorders Community, please click here.

About the WFH Humanitarian Aid Program

The WFH Humanitarian Aid Program improves the lack of access to care and treatment by providing much-needed support for people with inherited bleeding disorders in developing countries. By providing patients with a more predictable and sustainable flow of humanitarian aid donations, the WFH Humanitarian Aid Program makes it possible for patients to receive consistent and reliable access to treatment and care. None of this would be possible without the generous support of Sanofi Genzyme and Sobi, our Founding Visionary Contributors; Bayer, our Visionary Contributor; Grifols and Roche, our Leadership Contributors; and our Contributor, CSL Behring.  To learn more about the WFH Humanitarian Aid Program, visit www.treatmentforall.org.

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