The WFH has launched a new, interactive online tool for reporting data on people with bleeding disorders collected via the Annual Global Survey. This online resource, which allows users to look through over ten years of statistics, was launched at the WFH 2014 World Congress in Melbourne.
Since 1999, the WFH Annual Global Survey has gathered selected demographic and other information about people living with hemophilia, von Willebrand disease, rare factor deficiencies and inherited platelet disorders throughout the world.
Over the years, the survey has developed into a sophisticated system with features that have significantly improved the quality and accuracy of the data collected. The new system allows users to search for the information they need to support advocacy, lobbying, or research purposes and to create and customize graphs to display that information in a visual, impactful way. For example, users can consult a world map illustrating the global prevalence of bleeding disorders, or graphs that show the distribution of bleeding disorders by age group. They can also look at the use of factor products in different geographic regions to gain an overview of the global availability of treatment.
Thanks to its continuing partnership with national member organizations, the WFH has been able to paint a global landscape of people living with bleeding disorders and the availability of care and treatment needed to improve their lives.
With the data collection program and this new interactive online tool, now available on the WFH website, the WFH hopes to give the bleeding disorders community—including patients, researchers, clinicians and industry stakeholders—a fresh perspective on the global impact of bleeding disorders as well as a valuable insight into the improvements in access to care that have been made.
To browse the WFH Annual Global Survey data online, go to www.wfh.org/globalsurvey.