WFH NETWORK

Twinning Program leads to successful outreach in Mauritius

The Mauritian World Federation of Hemophilia (WFH) national member organization (NMO) successfully executed an outreach and identification campaign in the country which found 15 new patients and 35 hemophilia carriers. The Haemophilia Association of Mauritius (HAM) executed the campaign as part of the Twinning Program of the World Federation of Hemophilia (WFH), which aims to improve hemophilia care in emerging countries through a formal, two-way partnership between two hemophilia organizations or treatment centres for a period of four years. Outreach and identification are critically important focus areas for the bleeding disorders community, and the theme of this year’s World Hemophilia Day.

The campaign in Mauritius was led by an outreach social worker who disseminated information about bleeding disorder symptoms in order to foster early detection; directly reached the concerned families in order to encourage them to seek professional support and join support groups; and created a favourable environment for patients in order to improve their access to care, and facilitate their integration into the community and the working environment.

The outreach social worker worked in collaboration with a hemophilia nurse at the Jawaharlall Nehru hospital. They conducted home visits, prepared family pedigree charts, counselled and referred patients and parents to other service providers such psychologists. Transportation was provided by the NMO for financially-challenged patients on prophylaxis who needed to get to the hospital.

Overall, the campaign was a success and has had a positive impact on the lives of the new bleeding disorders patients.

The Twinning program is supported by exclusive funding from Pfizer.

World Hemophilia Day - April 17, 2019

Reaching Out: The First Step to Care

On April 17 of this year, our community will come together to celebrate World Hemophilia Day. The theme of this year’s big day is “Reaching Out: The First Step to Care”. For the WFH, a big part of the first step to care is the outreach and identification of undiagnosed people with bleeding disorders.

Patient outreach and identification is about finding individuals with hemophilia or other bleeding disorders—including von Willebrand disease—who have not yet been diagnosed, or whose health needs are not being met by healthcare services. These patients can be found through awareness-raising campaigns and educational activities.

You can help too! This April, show us that you care and that you are these to support the patients and caregivers in our community. Be part of World Hemophilia Day 2019 and help make a difference.