WFH NETWORK

Twinning Program successes highlighted

The World Federation of Hemophilia (WFH) Twinning Program pairs established hemophilia treatment centres and organizations in developed countries with respective partners in developing countries. Over the estimated four-year program, partners share information and collaborate to enhance the knowledge of healthcare professionals, strengthen policies and improve care for those living with bleeding disorders. The Program focuses on sustainability and capacity building, with the WFH providing annual funding and coaching support.

“This is one of my favourite, if not my favourite WFH program,” declared Alain Weill, President of the WFH. Weill added, “The Program enables unique networking, international awareness and long-lasting relationships.”

Sharon Caris, Committee Chair for the Hemophilia Organization Twinning Program discussed the launch of its new Youth Group Twinning Program in 2018. “The Program empowers youth and ensures that they are well prepared to take on a leadership role in their respective organization,” stated Caris. The WFH provides teaching and funding for travel expenses and activities. Potential activities encouraged by youth groups are summer camps, training workshops and World Hemophilia Day activities.

Youth Group Twinning partnerships have already facilitated successful collaborations between Canada and Bangladesh, U.S.A. and India and New Zealand and Nepal. Bojan Pirnat, Co-Chair of the Canadian Hemophilia Society Youth Twinning team explained the planning process behind their partnership with Bangladesh. Four joint video conferences were held between August and September 2017 to discuss strategic planning, outcomes and budget. Amir Hamza, MD, President of the Hemophilia Society of Bangladesh Youth Committee discussed how the collaboration has reduced the social stigma of bleeding disorders and has raised awareness through social media use in Bangladesh.

Mitch Semienchuk, Editor, Hemophilia World Online, wishes to thank Georghia Michael. PhD, for her contributions to this article.

The Twinning program is supported by exclusive funding from Pfizer.