Date, time: Friday, September 18, at 11:00 a.m. EDT
Languages: English – with live interpretation in Arabic and French
On Friday, September 18, at 11:00 a.m. EDT (6:00 p.m. in Saudi Arabia), the World Federation of Hemophilia (WFH) will host a 90-minute webinar on effective patient education programs in the Middle East. Patient Education is a core function of the work of any national member organization (NMO). It plays a vital role in enhancing patient care and outcomes. An educated patient is not only better able to manage their condition, but they are also better placed to support NMO efforts in advocating for improved access to care and treatment. NMOs in the Middle East have varied levels of knowledge and experience in designing and implementing effective patient education programs. While such programs have traditionally been delivered through publications, newsletters, magazines, and in-person meetings, there is an increasing trend towards online meetings and digital content—and the COVID-19 crisis has accelerated this trend. The webinar will look at this developing trend and provide an opportunity to share international and regional experiences from Canada, Ireland, Algeria, Lebanon, and Pakistan. In order to drive a collaborative conversation, the webinar will aim to elaborate on the following questions: what have NMOs from different regions learnt about the importance of educating themselves so they can educate others? How have they designed and implemented their education programs? What challenges have they faced and what lessons have they learnt? How can these experiences be adapted into effective strategies for improving patient education programs in the Middle East? How can NMOs design new programs given the limitations of the COVID-19 era?
The objectives of the session are to underline the importance of patient education as part of the NMO’s core functions; share international and regional lessons learnt through years of designing and implementing patient education programs; and discuss the challenges faced and the strategies that can be used to cope with changing country and regional contexts. The webinar will be chaired by Magdy El-Ekiaby, MD, Medical member, WFH Board of Directors and Regional Advisor for the Middle East. The speakers will be David Page (Canada), Brian O’Mahony (Ireland), Solange Sakr El-Hage (Lebanon), Masood Malik (Pakistan), and Latifa Lamhene (Algeria).
We encourage you to submit questions in advance by emailing the WFH at [email protected], no later than September 15, 2020. Participants can also ask questions during the session and presenters will do their best to answer them all—time permitting.