WFH NETWORK

WFH 2019 Annual Report: WFH continues to have an impact

The WFH 2019 Annual Report has just been published, and it shows the important work the World Federation of Hemophilia (WFH) is doing around the world. Our vision of Treatment for All is that one day, all people living with a bleeding disorder will have access to care, regardless of where they live. This includes people living with hemophilia and von Willebrand disease (VWD), those with rare factor deficiencies, and women with bleeding disorders.

In this year’s report, you will see how, in 2019:

  • Global programs—such as the GAP Program, the IHTC Fellowship Program, the Twinning Program, the IEQAS Program, the VWD Initiative Program and the Youth Leadership Program—are all making a difference
  • The WFH Humanitarian Aid Program is continuing to have an impact, with 241+ Million IUs donated, and 19,700+ people reached in 72 countries
  • Research and data collection initiatives—such as the Annual Global Survey (AGS), the WBDR, the WBDR Research Support Program, the WBDR Data Quality Accreditation Program, and the Gene Therapy Round Table—are helping to improve care
  • The 11th WFH Global Forum and the 16th MSK Congress covered the latest developments in care
  • World Hemophilia Day 2019 truly helped people in “Reaching Out: The First Step to Care”
  • Individuals and organizations partnered and collaborated with the WFH in 2019 in order to support our endeavours and make a difference
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Alain Weill, WFH President

Technology, innovation, creativity and the dedication of our community will bring us closer to Treatment for All than we have ever been.

The report also has many positive stories from around the world which showed how the WFH helped to change lives:

  • The WFH and the Ministry of Health of the Republic of Uzbekistan signed a Memorandum of Understanding (MoU) within the framework of the GAP Program
  • The WFH GAP Program in Vietnam (2016 to 2019) dramatically improved care in the country
  • The third WFH Africa Summit brought together key stakeholders in the African community to further advance the achievement of the four priority areas of the WFH Africa Summit 2017 declaration
  • In 2019—for the first time ever—the government of Bangladesh agreed to a firm commitment to budget funds for hemophilia patient care
  • The WFH regional MSK initiative was launched in the Middle East in 2018 to allow local specialists to standardize—and therefore improve—the management of MSK complications in the region
  • The XIX National Hemophilia Forum in Colombia—supported through the GAP Program—offered activities to train and educate multidisciplinary teams, and identified the potential next steps for increasing access to care for people with bleeding disorders in the country
  • The WFH Regional Workshop held in Mexico City, Mexico provided participants with tools to improve the diagnosis of hemophilia and inhibitors

To read the full WFH 2019 Annual Report  and learn more about what the WFH accomplished in 2019, please click here.