A number of national and international guidance documents, including the WFH Guidelines for the Management of Hemophilia, have supported integrated care as the optimal model of care for people with hemophilia. However, the effects of integrated care on patient-important outcomes had not previously been systematically synthesized or compared to alternative models. The guideline addresses these issues and identifies areas for further research to evaluate the optimal composition of the integrated care delivery model and its impact on specific patient outcomes. The guideline states that the composition of the integrated care team varies, but generally adheres to key components recommended by the WFH, including a medical director, a nurse coordinator, a physical therapist, a psychosocial expert (e.g., social worker) and specialized coagulation laboratory.
“The principles of care expressed in this guideline are consistent with the WFH’s own philosophy and principles,” stated Alain Weill, WFH President. “This is not surprising as the two organizations share the same goal of promoting the best care possible within the resources available in each country.”
NHF sought the expertise of McMaster University, internationally recognized for its work in this field, to assure that the methods used to develop the guidelines adhered to the principles promoted by National Guideline Clearinghouse and the Institute of Medicine. The guideline was developed to identify best practices in hemophilia care delivery to optimize outcomes for people living with hemophilia across the United States.
The Guidelines have also been endorsed by the American Society of Hematology (ASH) and the International Society for Thrombosis and Haemostasis (ISTH).
A detailed version of this guideline, as well as supplementary materials have been published in the July 2016, Vol. 22, Supplement 3 issue of the journal Haemophilia, available online at: