WFH NETWORK

WFH Global NMO Training: Supporting bleeding disorders communities all over the world

The WFH leads many endeavours that aim to support bleeding disorders communities all over the world. One of our key programs for doing that is the WFH national member organization (NMO) trainings and capacity building workshops. These events are held at national and regional levels to strengthen the knowledge and skills of NMOs and help them improve their internal structures as well as their external activities and relations. The workshops are designed around the needs of NMOs and address a range of important topics: fundraising, conflict resolution, women with bleeding disorders, advocacy and lobbying, pharmaceutical relations, and event planning.

Before every WFH World Congress, the WFH holds a three-day Global NMO Training. This year, the training was held from July 21 to 23 at the Gaylord Palms Resort and Convention Center in Orlando, U.S.A. The program covered many topics of interest to NMOs, including strategic planning, implementation of projects, developing care for hemophilia, and volunteer development. It will also feature collaborative social activities and joint sessions with the National Hemophilia Foundation (NHF). The 2016 event was a very special one, because it marked the first time the WFH hosted a Global NMO training in parallel with the NHF Annual Meeting.

All Global NMO Trainings include the participation of one patient representative chosen from each WFH NMO. The selected person participates with their peers from around the world in topical plenaries and workshop trainings. This year’s event also included the WFH Youth Fellowship Program. Of the 50 submissions we received from NMOs, 21 youths were selected. In addition to participating in the Global NMO Training, the selected Youth Fellowship Program candidates received free airfare to Orlando, free Congress registration and accommodation, and they also were able to attend the WFH Annual Meeting of the General Assembly as observers.

In addition to the training aspect of NMO events, there is also an important networking aspect that cannot be overlooked. The training sessions tend to be with smaller groups, which means that attendees had a chance to “break the ice” before the WFH 2016 World Congress started. Many attendees have said that the NMO training event is an excellent way for them to make new friends, meet new contacts and prepare for the Congress.

To find out more about the WFH Global National Member Organization Training, visit the WFH NMO Skills training page.