In 2020, the World Federation of Hemophilia (WFH) Humanitarian Aid Program provided over 1.1 million IUs of donated factor, and over 132,000 mg of non-factor replacement therapy to hemophilia treatment centres (HTCs) in Vietnam. This factor was used for acute bleeds, and also for prophylactic treatment. The result of these efforts is that children and adults in the country now enjoy a better quality of life. Kids are going back to school, and adults—and the parents of children with a bleedings disorder—are going back to work to help support their families.
“A simple thank you would not be enough to express all our gratitude for the support of the WFH and the WFH Humanitarian Aid Program,” says Bach Quoc Khanh, MD, PhD, Director of the National Institute of Hematology and Blood Transfusion in Hanoi. “On behalf of hemophilia patients and all the medical staff working in hemophilia care, we would like to send out our warmest heartfelt thanks for the support of the WFH.”
The video at the top of this page tells the story of several people with bleeding disorders (PWBDs) whose lives were changed for the better thanks to the Program. You’ll hear the story of Bao, who had so many bleeds that his grandmother feared that he would eventually have to use crutches or even a wheelchair to move around. Instead, he received knee-replacement surgery and can walk on his own. You’ll also hear the story of Duy Anh Nguyen, who would miss school because of bleeds and was afraid of playing for fear that he might hurt himself. In his case, prophylaxis has literally transformed his life. To watch the video, click on the player above, or watch it on YouTube.
To find out more about the WFH Humanitarian Aid Program, please click here.
About the WFH Humanitarian Aid Program
The WFH Humanitarian Aid Program improves the lack of access to care and treatment by providing much-needed support for people with inherited bleeding disorders in developing countries. By providing patients with a more predictable and sustainable flow of humanitarian aid donations, the WFH Humanitarian Aid Program makes it possible for patients to receive consistent and reliable access to treatment and care. None of this would be possible without the generous support of Sanofi Genzyme and Sobi, our Founding Visionary Contributors; Bayer and Roche, our Visionary Contributors; Grifols, our Leadership Contributor; and our Contributors, CSL Behring and Takeda. To learn more about the WFH Humanitarian Aid Program, visit www.treatmentforall.org.