Bao is a young man with hemophilia. His grandmother is caring for both him and his brother in Hanoi because his father left home and his mother is working outside the city. Bao has had to live with frequent bleeds in his knee since he was child. With every new bleed, his mobility was reduced, and his knee pain increased—eventually to the extent that his grandmother feared that he would have to use crutches or even a wheelchair for the rest of his life. Fortunately, donated factor from the WFH Humanitarian Aid Program made it possible for Bao to receive knee-replacement surgery. It has now been three years since the surgery and Bao can walk on his own. He’s currently studying graphic design so that he can be self-sufficient and live independently. “I didn’t think that my grandson would ever have that surgery,” says Bao’s grandmother. “Thank you all very much. This will be engraved in my heart. I will never forget what you did for us.”
Duy Anh Nguyen used to go to the National Institute of Hematology and Blood Transfusion every week for bleeds. Often, he would miss school because of bleeds and was afraid of playing for fear that he might hurt himself. Three years ago, he went on prophylaxis thanks to donated factor provided by the WFH Humanitarian Aid Program, receiving infusions twice a week. The treatment literally transformed his life. He now rarely bleeds and walks normally. He even goes biking and swimming like a normal child without fear of hurting himself and causing a bleed.
Bach Quoc Khanh, MD, PhD, is the Director of the National Institute of Hematology and Blood Transfusion in Hanoi. His organization has worked extensively with the WFH and the WFH Humanitarian Aid Program for many years, and he is greatly appreciative of the support he has received, both in terms of donated factor and in terms of education and training. “A simple thank you would not be enough to express all our gratitude for the support of the WFH and the WFH Humanitarian Aid Program,” he says. “On behalf of hemophilia patients and all the medical staff working in hemophilia care, we would like to send out warmest heartfelt thanks for the support of the WFH.”
About the WFH Humanitarian Aid Program
The WFH Humanitarian Aid Program improves the lack of access to care and treatment by providing much-needed support for people with inherited bleeding disorders in developing countries. By providing patients with a more predictable and sustainable flow of humanitarian aid donations, the WFH Humanitarian Aid Program makes it possible for patients to receive consistent and reliable access to treatment and care. None of this would be possible without the generous support of Sanofi Genzyme and Sobi, our Founding Visionary Contributors; Bayer and Roche, our Visionary Contributors; Grifols, our Leadership Contributor; and our Contributors, CSL Behring and Takeda. To learn more about the WFH Humanitarian Aid Program, visit www.treatmentforall.org.