The Online Registry of Clotting Factor Concentrates on the World Federation of Hemophilia (WFH) eLearning Platform puts the details of over 100 products at your fingertips!
Originally created in 1997 by Meirione Costa e Silva of Brasilia and Carol Kasper, MD, for the International Society on Thrombosis and Haemostasis (ISTH), the purpose of the Online Registry of Clotting Factor Concentrates is to help medical personnel identify available clotting factor concentrates (CFCs) and stay abreast of pharmaceutical company changes. The second version was published as part of the WFH periodic Facts and Figures series, and in July 2016, the third version was launched on the WFH eLearning Platform.
The Online CFC Registry provides a wealth of easily accessible and actively updated data that can be used by healthcare providers and officials, pharmacists, and people with bleeding disorders. It provides an overview of available products and facilitates comparisons between them. In this way, it helps doctors and pharmacists identify and characterize products that may be new for them—for example products that people with bleeding disorders bring with them during their foreign travels. Manufacturers of CFCs can contact the WFH to have their products added to the Registry, or to revise and update the details of their products in the Registry.
Users who access the Online CFC Registry immediately see available products by indication, product type, brand name, and company. Users can export the entire Registry (as an Excel spreadsheet or PDF) or they can filter the output display by indication and product type. Users can further refine their search by entering text into any of the four search fields.