WFH NETWORK

WFH to host two informational webinars on Gene Therapy Registry

Dates: Monday, November 9 and Tuesday, November 24

Time: 10 a.m. EST (15:00 UTC/GMT)

November 9: Register here

November 24: Register here

The World Federation of Hemophilia (WFH) will host two 60-minute informational webinars on the WFH Gene Therapy Registry, on November 9 and November 24, at 10 a.m. EST (15:00 UTC/GMT). The WFH Gene Therapy Registry is designed to collect long-term data on safety, and variability and durability of efficacy on all people with hemophilia (PWH) who receive gene therapy.

Webinar attendees will have a chance to hear Glenn Pierce, MD, PhD, WFH Vice President, Medical (U.S.A), Barbara Konkle, MD, (U.S.A.), and Wolfgang Miesbach, MD (Germany) discuss the following aspects of the WFH Gene Therapy Registry:

  • Protocol and core data set
  • Implementation plan
  • Timeline

Presentations will be followed by a Q&A session.

We encourage everyone interested in learning more about the WFH Gene Therapy Registry to register here for the session on November 9, and here for the session on November 24.

We encourage you to submit questions in advance by emailing the WFH at [email protected], no later than November 6. Participants will also have the opportunity to ask questions during the session.