After much anticipation, the World Federation of Hemophilia (WFH) World Bleeding Disorders Registry (WBDR) 2019 Data Report has been published. This is the second edition of the data report and includes data from over 4,000 patients from 53 hemophilia treatment centres (HTCs) and 29 countries around the world. The report highlights the clinical data from patients enrolled in 2019 and demonstrates the growth of the WBDR over the past two years. The addition of the extended data set in 2019 has allowed for more detailed analysis, which will improve patient health monitoring and inform clinical practices. Another milestone reached in 2019 was the completion of the data linkage proof of concept study, through which data from the Czech Republic was directly integrated into the WBDR. This concept will continue to be applied to countries with existing registries, resulting in a more representative global database of patients with hemophilia.
The WBDR continues to grow and act as a useful tool for physicians, clinicians, and researchers around the world. Since the publication of the report, an additional 29 HTCs have started participating, and over 2,000 more patients have been enrolled in the registry for a total of 6,000 patients. The WFH greatly appreciates the efforts of participating HTCs and patients in this valuable project, as well as the support of our corporate partners.
The 2019 WBDR Data Report can be found here.
To learn more about the WBDR, please click here.