WFH NETWORK

WFH WBDR Research Support Program announced

The World Federation of Hemophilia (WFH) is pleased to announce the launch of the WFH World Bleeding Disorders Registry (WBDR) Research Support Program.

The WBDR Research Support Program is designed to motivate and support hemophilia treatment centres (HTC) with the collection, analysis and use of their WBDR data. The goal is to encourage countries with limited data collection experience to participate in the WBDR and to use their data for research or advocacy.

Hemophilia treatment centres from all regions of the world are encouraged to apply. Applicants must be registered with the WBDR and either have ethics approval to participate in the WBDR or be in the process of applying for ethics approval.

The Research Support Program will fund up to 15 projects per year for between $2,000 and $5,000 USD per project. The WBDR team is excited to foster a data-driven culture with participating HTCs. Projects awarded with research support will have the opportunity to kick-start their participation in the WBDR, start collecting quality data and begin analyzing their data for research purposes.

It is important to note that collaboration on research proposals is strongly encouraged by the WFH. HTCs can work together on a national, regional or international level to submit a research proposal. Collaboration will allow applicants to conduct comparative analysis in their research and analyze a larger dataset.

Further details on eligibility, selection criteria, and conditions are available here. Application forms are available in English, French, Spanish, and Russian and the deadline for submission is October 15, 2018.

Interested applicants are encouraged to reach out to wbdr@wfh.org with any questions or comments.