Date, time: Wednesday, December 9, 2020 at 19:00 East Africa Time (18:00 Central Africa Time, 17:00 West Africa Time, 18:00 South Africa Standard Time).
On Wednesday, December 9, at 19:00 East Africa Time (11:00 EST) the World Federation of Hemophilia (WFH) will host a 90-minute webinar on advocacy for national member organizations (NMOs) in Africa.
The COVID-19 pandemic has significantly affected the bleeding disorders community, and many countries have seen their governments shift their focus and resources to combating the pandemic. This has put a strain on the support and logistics systems that local bleeding disorders communities count on.
The “Advocacy during COVID-19: what can we do in Africa?” webinar will provide an opportunity for NMOs in Africa to better understand the importance of a tailored advocacy strategy to improve the quality of life of their bleeding disorder communities. In this challenging environment, NMOs need to remain aware of the changes in government priorities and take a proactive approach to ensure that the needs of the local bleeding disorders communities stay on government agendas. This is especially important in resource-constrained countries, where sustainable access to treatment and care for bleeding disorders is still a work-in-progress. African NMOs should scale up their outreach and advocacy efforts and strive for the recognition of bleeding disorders in national healthcare delivery policy programs in their countries.
The webinar will be facilitated by Megan Adediran, Member of the WFH Board of Directors and Executive Director of the Haemophilia Foundation of Nigeria, Bradley Rayner, National Chairperson and President of the South African Hemophilia Foundation, and Saliou Diop, MD, Member of the WFH Board of Directors. Participants will also have the opportunity to ask questions during the sessions and presenters will do their best to answer them, time permitting. The webinar will be conducted in English, with simultaneous translation into French and Portuguese.