The objective of the World Federation of Hemophilia (WFH) World Bleeding Disorders Registry (WBDR) is to develop a database of high quality, real world data on a large population of patients with hemophilia. Now, after nine months, the pilot study has come to a successful closure. The data and evidence generated from the WBDR will be used to advance the understanding of hemophilia worldwide.
A pilot study was designed to assess the feasibility of conducting a patient registry in countries with varying levels of care. Now, after nine months, the pilot study has come to a successful closure.