WFH NETWORK

WFH Youth Group Twinning Pilot Project to Launch in 2018

The World Federation of Hemophilia (WFH) Twinning Program has a long history of bringing people together to share expertise, experience, skills, and resources with the goal of improving care for those with bleeding disorders. Since its beginnings over 20 years ago, the WFH Twinning Program has established 215 partnerships, across 113 countries, helping bring twinning partners together for a total of 949 years of combined collaboration. In 2018, this storied history will have a new chapter with the launch of the Youth Group Twinning Pilot Project.

The World Federation of Hemophilia (WFH) Twinning Program has a long history of bringing people together to share expertise, experience, skills, and resources with the goal of improving care for those with bleeding disorders. Since its beginnings over 20 years ago, the WFH Twinning Program has established 215 partnerships, across 113 countries, helping bring twinning partners together for a total of 949 years of combined collaboration. In 2018, this storied history will have a new chapter with the launch of the Youth Group Twinning Pilot Project.

Designed to help foster the next generation of leaders in the global bleeding disorders community, the two-year Youth Group Twinning Pilot Project will help improve and strengthen youth groups in developing partner countries. The pilot—set to begin on January 1, 2018—will feature four youth groups: two developing (emerging) and two developed (established) NMO youth groups. The WFH will assist the youth groups in setting up their Twinning partnership by helping to match them with partners, facilitating introductory conference calls and meetings, and essentially making sure that both groups are well prepared to kick off their programs. Once the Youth Group Twinning Program has started, however, the leaders of the youth groups are expected to work autonomously and demonstrate that they have the necessary leadership skills to effectively manage their youth group.

The first phase of the Youth Group Twinning Pilot Project began in December 2016, when the WFH distributed information about the pilot. This month, interested WFH national member organizations (NMO) will submit their expression of interest forms to the WFH. Over the next several months, a shortlist of interested youth groups will be selected, and assessments visits will be made so that prospective twins can meet face-to-face for the first time to further establish interest and fit. In November 2017, the WFH will announce which youth groups have been selected for inclusion in the Youth Group Twinning Pilot Project.

Throughout 2018 and 2019, the chosen twins will work closely together in order to meet their shared goals. Every year, the twins will submit a progress report so that the WFH can establish how they are progressing with their action plans. This will allow the WFH to establish how successful the pilot has been and how it will continue in the future.

The interest in the Youth Group Twinning Pilot Project has been strong. The WFH hopes that this is a sign that the pilot will be successful and will become another milestone in the history of the WFH Twinning Program. 

The Twinning program is supported by exclusive funding from Pfizer.