Bleeding and response to treatment

Correctly diagnosing a bleed is important to enable precision medical care, stated Annette von Drygalski, Associate Clinical Professor of Medicine, University of California, San Diego.

“The physical exam, patient and physician perception of bleed diagnosis are unreliable. Symptoms and findings are non-distinct and do not help determine if joint pains are associated with bleeding,” she said.

The development of a point-of-care musculoskeletal ultrasound for rapid joint bleed detection and joint evaluation in the office by hemophilia providers has been successful and is increasingly being introduced into hemophilia clinics worldwide.

Diagnosis of bleeds using ultrasound or other imaging will be further addressed during the General Plenary – Bleeding and Response to Treatment (How to Define a Bleed) today at 8:45. Dr. von Drygalski will be joined by David Page, National Executive Director, Canadian Hemophilia Society, and will speak about a patient view survey of different parts of the world. Kate Khair, Consultant Nurse, Great Ormond Street Hospital for Children NHS Trust, Visiting professor Health and Social Care, will address the topic of children who cannot speak for themselves.

Chair Paul Giangrandre, Chairman of the Medical Advisory Board, European Haemophilia Consortium, will moderate the session.