WFH NETWORK

Data collection at the WFH Resource Centre

The Resource Centre at Congress is your chance to learn about the data collection initiatives at the WFH.  Stop by to speak with someone from the Research & Public Policy team and test out the many different programs that are available on our computer pods. 

For the very first time, the World Bleeding Disorder Registry (WBDR) will be on display. This newly-designed web-based registry is the key focus of the WFH Epidemiological Research Program. The database will collect high quality, observational data on a large population of patients with hemophilia. The WBDR is currently in a pilot phase of implementation with 31 hemophilia treatment centres across the world participating. The WFH Resource Center is your chance to have a very first look at the WBDR.

The Annual Global Survey will also be showcased at the WFH Resource Center. This is your opportunity to ask questions, receive useful tips on the online platform and learn about updates in the 2015 survey. The 2014 Report on the Annual Global Survey is available if you want to take a hardcopy home. If you are an Annual Global Survey data respondent who has a question about your 2015 submission, please drop by for a chat. The interactive public graphs­­­­—using Annual Global Survey data—are also on display if you are interested in boosting your evidence-based advocacy efforts. The interactive public graphs offer customizable queries on 15 years of Annual Global Survey data.

We look forward to showing you how you can benefit from the WFH data!