WFH NETWORK

World Hemophilia Day 2014 celebrated around the world

On April 17, World Hemophilia Day, the global bleeding disorders community joined together to raise awareness, to celebrate who they are, and to Speak Out: Create Change for the millions of people around the world living with a bleeding disorder.

As part of the Speak out: Create Change campaign the WFH created five different online infographics that were posted to the WFH Facebook page (and are still available). The infographics provided important information on key issues for the community to comment on and like and share with their online network. Some of the issues that were addressed were the qualities of a good leader, symptoms in women with a bleeding disorder, and the importance of fitness in those with a bleeding disorder.

The infographics were incredibly popular with the WFH online community. The infographic depicting the symptoms of a bleeding disorder in women was the most liked and shared.

The WFH also hosted an online photography competition with the theme UR1in1000 that asked people to share their photos that demonstrate what it is about them that makes them unique. The dozens of photos from across the world can still be seen on the Facebook page.
This year’s World Hemophilia Day was also exceptional as it marked a series of particularly important landmarks being lit red to help raise awareness amongst the general public about the issues facing the bleeding disorders community. The world-famous Niagara Falls’ waters were lit red on the US and Canadian sides, as well as the CN Tower in Toronto, Ontario, Langevin Bridge in Calgary, Alberta, the AAMI Park at the Olympic Parks in Melbourne Australia, and the Leonard P. Zakim Bunker Hill Bridge in Boston.

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It is the WFH’s hope that this unprecedented support spreads to all corners of the globe and that in 2015 even more global landmarks shine red on World Hemophilia Day.

The WFH is grateful to Bayer, Baxter, Biogen Idec Hemophilia, CSL Behring, Novo Nordisk, Precision Biologic for funding support of World Hemophilia Day 2014.