WFH NETWORK

World Hemophilia Day 2016

Treatment for All is the Vision of All

In 2016 the World Federation of Hemophilia (WFH) is working with the global bleeding disorders community to focus on the theme of Treatment for All is the Vision of All. Join us on April 17 to raise awareness about hemophilia and other inherited bleeding disorders.  Globally 1 in 1,000 people has a bleeding disorder. Most are not diagnosed and do not receive treatment. Together we can change that.

This year we will mark World Hemophilia Day in a few exciting ways. We invite the community to share their thoughts and their photos on www.worldhemophiliaday.org. All submissions are welcome and we are curious to hear what you think we can do together to reach the shared goal of Treatment For All.

On World Hemophilia Day 2016, the WFH will also launch a special video series marking the expansion of the WFH Humanitarian Aid Program. In December, a team from the WFH travelled to meet with our partners in Senegal, Africa. This visit marked the important and remarkable expansion of the WFH Humanitarian Aid Program which has benefitted many patients around the world.

Over the past 20 years, the WFH has channeled over 270 million international units (IU) to those most in need. Moving forward, the expansion of this program will mean that 500 million IUs will be distributed between 2015 and 2020. With this kind of expansion comes great responsibility and the WFH is well positioned to take on the challenge. Working with a global network of WFH national member organizations (NMOs), healthcare professionals, industry partners, and stakeholders, the WFH will be able to work towards achieving its vision of Treatment for All.

Visit WFH social media channels on April 4th for the first video release, with a new video release happening every Monday until June. Each video will tell a story about how the expansion of the WFH Humanitarian Aid Program will benefit the global bleeding disorders community.

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Light it Up Red!

The WFH is encouraging the community to come together and show support in raising awareness for global bleeding disorders by lighting it up red on World Hemophilia Day. Each year, we have added new landmarks and monuments to the list of WFH partners who support World Hemophilia Day.  If there is a landmark near you, contact them to see if it can be lit in red. If not, pull out those red holiday lights and participate at home. This April 17, join the WFH and our many international partners by lighting it up red!

The WFH is grateful for the support of World Hemophilia Day from Baxalta, Bayer, Biogen, CSL Behring, F. Hoffman-La Roche, Novo Nordisk, Precision Biologic, and Sobi.