WFH NETWORK

World Hemophilia Day 2020 social media toolkit now available

World Hemophilia Day 2020 is coming soon! The World Federation of Hemophilia (WFH) encourages members of the community, partners and national member organizations (NMOs) to engage with the community virtually on April 17 and let your voice be heard! You can do this by posting your personal stories and your words of encouragement and hope on social media. The WFH is active on FacebookTwitter and LinkedIn, and we would love to hear from you on those platforms. Please note that stories and posts shouldn’t contain references to treatment product brand names.

If you’re interested in finding out the best way to get your voice heard on April 17, you’ve come to the right place. Below you’ll find the World Hemophilia Day social media toolkit which covers the different aspects of getting involved on social media in the best way possible.

About World Hemophilia Day

Since 1989, patient groups worldwide have annually marked World Hemophilia Day on April 17 to raise the awareness and understanding of hemophilia and other bleeding disorders. The date was chosen in honor of WFH founder Frank Schnabel, who was born on that day.

World Hemophilia Day aims to:

  • Promote the importance of taking coordinated and concerted actions to achieve the WFH vision of “Treatment for all”
  • Draw attention to the key issues and put hemophilia and bleeding disorders in the spotlight

2020 theme and key messages

April 17, 2020 is of World Hemophilia Day. The longevity of this celebration is proof of the dedication and tight-knit nature of our community. The theme of World Hemophilia Day in 2020 is “Get+involved”. It’s a call to action for everyone to help drive the WFH vision of “Treatment for All” at the community and global level. Everyone can play a part—from patients, family members, and caregivers, to corporate partners, Hemophilia Treatment Centre (HTC) volunteers and those who support their national member organization (NMO). We want to encourage everyone to “Get+involved” virtually, stay safe, and help increase the awareness of inherited bleeding disorders and the need to make access to adequate care possible everywhere in the world. If you’re showing support, you’re playing a part in the goal of Treatment for All.

www.worldhemophiliaday.org

Every year, the WFH offers the bleeding disorders community a unique and intimate platform where people everywhere can come together and celebrate the day. Patients and caregivers can use this platform to share their personal stories and pictures. The specific call to action for this platform is to:

  • Spread the word about World Hemophilia Day
  • Encourage people to share their World Hemophilia Day-related stories and activities

For more information, check out www.worldhemophiliaday.org.

Use the following hashtags on social media to join the conversation

#WorldHemophiliaDay
#WHD2020
#LightItUpRed

Change your profile picture

  • Download our World Hemophilia Day Facebook banner
  • Take a red selfie and share it on social media using a hashtag

Spread the word

Light It Up Red on social media!

  • Wear something red at home and share a selfie on social media
  • Challenge your coworkers or schoolmates to post a picture of themselves wearing red for the day

Go live!

Go live on Facebook for a few minutes to share your story. You can choose to focus on how you get involved in the bleeding disorders community, or you can share what it’s like living with a rare disease like hemophilia.

Plan out your communication strategy

  1. Develop content around the theme. Plan your posts in advance. Create a calendar with the posts and social media platforms where they will be shared. Use content that is easy to share and develop different formats (short stories, videos, etc.)For maximum impact, write your posts using the correct hashtags.
  2. Choose the most relevant channels for your audience. Maximize your engagement!
  3. Have a clear call to action in your post. Your audience probably wants to support you—so just let them know how: by sharing a story, posting a picture in red, etc.
  4. Engage with the community.
    • Comment on World Hemophilia Day threads
    • Tag friends who would be interested in learning more about your experience with hemophilia
    • On Facebook, share your posts in private groups to increase reach and visibility
    • On Twitter, tag personalities you think would benefit from knowing more about hemophilia

Example social media posts

#WorldHemophiliaDay is April 17! Show your support by sharing this infographic!

#WorldHemophiliaDay is about celebrating the bleeding disorders community. Retweet/share if someone in your family is living with #hemophilia #WHD2020

Today, I am sharing a picture in red to show support for people with #hemophilia! Please do the same by sharing a photo of yourself in red! #WorldHemophiliaDay #WHD2020

Let us know what you are planning!

We want to support you and help you amplify your efforts! Let us know about what you’ve done—or what you’re planning on doing—to Get+involved. Stories, pictures, or social media posts are all welcome. Please note that stories and posts shouldn’t contain references to treatment product brand names. Share all your events with Erika Laincy, WFH Marketing & Communications Manager, at elaincy@wfh.org.

WFH channels

Downloadable World Hemophilia Day 2020 resources