April 17, 2020 was World Hemophilia Day, and the theme of “Get+involved” was felt around the world despite the challenges of the current COVID19 crisis. From all four corners of the globe, people from the bleeding disorders community took the WFH vision of “Treatment for All” to heart—virtually. On social media, and on worldhemophiliaday.org—our World Hemophilia Day microsite—people everywhere shared their stories with compelling honesty.
The WFH Facebook page, LinkedIn page and Twitter timeline saw hundreds of updates on the big day. Our World Hemophilia Day microsite—designed to offer visitors information about inherited bleeding disorders, as well as communications material to support them in creating their own activities—was also very popular. Nearly 4,700 people visited the platform, and the pages of the site were viewed over 11,000 times. Over 300 stories were posted on the platform: people told their own personal stories of living with a bleeding disorder, or sometimes shared their experiences knowing someone who has a condition.