WFH NETWORK

World Hemophilia Day 2021 social media toolkit now available

World Hemophilia Day 2021 is coming soon! The World Federation of Hemophilia (WFH) encourages members of the community, partners and national member organizations (NMOs) to engage with the community virtually on April 17 and let your voice be heard! You can do this by posting your personal stories and your words of encouragement and hope on social media. The WFH is active on FacebookTwitter and LinkedIn, and we would love to hear from you on those platforms. Please note that stories and posts shouldn’t contain references to treatment product brand names.

If you’re interested in finding out the best way to get your voice heard on April 17, you’ve come to the right place. Below you’ll find the World Hemophilia Day social media toolkit which covers the different aspects of getting involved on social media in the best way possible.

About World Hemophilia Day 

Since 1989, patient groups worldwide have annually marked World Hemophilia Day on April 17 to raise the awareness and understanding of hemophilia and other bleeding disorders. The date was chosen in honor of WFH founder Frank Schnabel, who was born on that day.

World Hemophilia Day aims to:

  • Promote the importance of taking coordinated and concerted actions to achieve the WFH vision of “Treatment for all”
  • Draw attention to the key issues and put hemophilia and bleeding disorders in the spotlight

2021 theme and key messages

The theme of the event this year is “Adapting to change: sustaining care in a new world”. This important event is about bringing the global bleeding disorders community together. With the COVID-19 pandemic having a major impact on people with a bleeding disorder, that objective has never been more important. Our community is made up of a great diversity of people—from patients and their families, to carers, physicians and researchers—each of whom has been affected by the pandemic in a different way. We need to continue providing support to these people now, and in the future once the pandemic has passed. The world has changed greatly over the last year, but one thing hasn’t: we are still in this together, and we will always be stronger together as a community in our shared vision of “Treatment for All”.

www.worldhemophiliaday.org

Every year, the WFH offers the bleeding disorders community a unique and intimate platform where people everywhere can come together and celebrate the day. Patients and caregivers can use this platform to share their personal stories and pictures. The specific call to action for this platform is to encourage people to share their World Hemophilia Day-related stories and activities.

For more information, check out www.worldhemophiliaday.org.

Use the following hashtags on social media to join the conversation

#WorldHemophiliaDay
#WHD2021
#LightItUpRed

Change your profile picture and Light It Up Red

  • Download our World Hemophilia Day Facebook banner or Facebook frame and light yourself up red!
  • Wear something red at home and share a selfie on social media
  • Challenge your coworkers or schoolmates to post a picture of themselves wearing red for the day—or post a picture collage of everyone in your organization wearing red!

Spread the word

Examples of social media posts

Here are some social media posts you can use for your own campaigns: 

  1. #WorldHemophiliaDay is April 17! Learn more about this historic day at wfh.org/WDH2021 and download your own #WHD2021 poster!
  2. #WorldHemophiliaDay is about celebrating the bleeding disorders community. Retweet/share if someone in your family is living with #hemophilia #WHD2021
  3. Next week is #WorldHemophiliaDay. Download the WFH Facebook frame here, and #LightItUpRed if you or a loved one is living with a bleeding disorder! Knowledge is only power if it is shared! #WorldHemophiliaDay #WHD2021
  4. Mark your calendars! April 17th is #WorldHemophiliaDay. How will you celebrate? We will be doing …
  5. #WHD2021 is day for everyone to learn more about #bleedingdisorders. Join the movement at worldhemophiliaday.org and learn more about #hemophilia at the dedicated WFH eLearning centre: elearning.wfh.org/
  6. This #WorldHemophiliaDay share YOUR story on adapting to change. Submit your video message to the #WHD2021 video series here:
  7. We are now x weeks away from #WorldHemophiliaDay! This year, #WHD2021 will rally our community around the theme Adapting to change, sustaining care in a new world. We will focus on sharing our stories on how our community, innovated, adapted, discovered and sustained care in this new world. Share your story at worldhemophiliaday.org.
  8. This #WorldHemophiliaDay share your story about adapting to change! Om Krishna Sakhakarmi, 23, is from Bhaktapur, Nepal. He has severe hemophilia A with inhibitors. Thanks to donated factor provided by the WFH Humanitarian Aid Program, he was able to undergo joint replacement surgery—the first in the country, despite the global pandemic. Read more about his story here: http://ow.ly/Cl2V50DcLff
  9. How are you helping to sustain care? Share your story this #WHD2021. Through the continued efforts of the WFH Humanitarian Aid Program, Jagat Man Rajbahak, 30, from Bhaktapur, has undergone surgery for a prosthetic leg and now enjoys a much greater quality of life and was able to open his own mobile phone repair shop. Learn more about the WFH Humanitarian Aid program: http://ow.ly/Cl2V50DcLff
  10. How can you help sustain care this #WorldHemophiliaday? The ASH ISTH NHF WFH Guidelines on the Diagnosis and Management of VWD are freely available to all online. Developed by experts from around the world on diagnosing, managing, and living with VWD, these evidence-based recommendations offer guidance for shared decision making and are a foundation for advocacy. Share the guidelines to improve care for those living with #VWD: wfh.org/VWDGuidelines
  11. It’s here! Today is #WorldHemophiliaDay – a day dedicated to celebrating our community around the world! We’ve shared our story with the community, and you can too at worldhemophiliaday.org
  12. I turned my compassion to action. Join me on #WorldHemophiliaDay and support the work of the WFH. wfh.org/give [see below for an image that can be used with this example]

The WFH is launching an online video series to connect and share stories on this important day in the global bleeding disorders community. We want to hear from everyone—patients, carers, researchers, healthcare professionals and more! Your video may be featured on social media for World Hemophilia Day!

Want to join the #WHD2021 video series? Here’s how:

STEP 1:

First, take a moment to think about how you would answer the following questions.

  • How have you adapted to change this year?
  • What does sustaining care mean for you?

Important: we request that you make your videos one minute long or less.

STEP 2:

Have a look at the recording instructions in the WFH video recording guide here.

STEP 3:

Once you’re ready to record, follow this basic format for your recording. We have included some suggestions to help guide you, feel free to choose the prompt that works for you.

Introduction

You can use any one of the below as a guide or create your own.

  1. Hello, my name is [First name, Last name] from [name of country] and I am the [name of title/position] at [name of organization]
  2. Hello, my name is [First name, Last name] from [name of country]
  3. Hello, my name is [First name] from [name of country]

How have you adapted to change this year?

You can use any one of the below as a guide or create your own.

  1. I have experienced a transition in my care through…
  2. We overcame the following challenge…
  3. We decided to change our approach and…
  4. We collaborated together to adapt by…
  5. We did several things to adapt to change, including…
  6. My organization has changed the way we deliver <service name>…
  7. At my organization, I have adapted to change by…

What does sustaining care mean for you?

You can use any one of the below as a guide or create your own.  

  1. I plan to continue advocating for…
  2. My organization will…
  3. I hope to experience….
  4. We plan on continuing what we did in 2020 and…
  5. We will sustain care by…
  6. We did a lot in 2020, in 2021 we plan on…
  7. We will do the following additional projects to sustain care…

STEP 4:

Submit your video through Google Drive here (for Gmail users) or email the file to [email protected].  If you have any issues emailing or submitting your video, please contact us for assistance.

Note:

  • All videos will be reviewed by the WFH to ensure consistency and quality. Please let us know if you do not want your video edited by our video production team. Note that uncut videos will still be used on social media platforms.
  • By submitting a video, you are giving the World Federation of Hemophilia (WFH) consent to use your personal story on our websites and/or social media platforms for the purpose of promoting the WFH vision of Treatment for All to the global bleeding disorders community.

If you have any questions about the recording process, please contact the WFH at [email protected].

Download everything you need to populate your feed with World Hemophilia day content and stories! The following shareable images and content is available here in English, French and Spanish:

  • Poster
  • One-pager
  • Social media images
  • Web ads
  • Webpage banner
  • Webpage slider
  • News box banner
  • HWO Articles
  • WFH Webinars

Let us know what you are planning!

We want to support you and help you amplify your efforts! Let us know about what you’ve done—or what you’re planning on doing—on April 17. Stories, pictures, or social media posts are all welcome. Please note that stories and posts shouldn’t contain references to treatment product brand names. Feel free to share your events with the WFH Marketing & Communications department at [email protected].